brain fog?

If someone had told me that they had this prior to my getting sick, I would’ve probably thought they were missing a neuron or two. Unfortunately, I have brain fog. Yes, this is why I feel like I just woke up from the deepest sleep for most of the day despite ample caffeine. I thought perhaps that it was my imagination, a physical manifestation of the subconscious wrestling with illness. How could this really be a “thing?” But I realized that indeed it is a thing when this thing was (temporarily) removed. The wonder drug is Remicade. Two hours after it dripped into my arm I realized that my mind was clear. I was multitasking (what?!) after months of mental disability. And the next morning I woke up at 6AM naturally! Until now (after years of punctual wake up at 4AM) it’s taken extreme willpower to move out of bed before 9:30. Wow! This disease continues to surprise me. If “brain fog” is a real thing, what causes it? The best answer you can get from the docs is-“it’s caused by fatigue. It’s like having the flu-you can’t get out of bed because you have no energy. Your body is using everything to fight the virus. In Sarcoidosis, your body is using everything to fight nothing!” So there you have it. You cannot judge people. I believe that if someone is complaining about something, they really have a problem-even if you can’t understand it. We owe it to others to be compassionate. After all, we are only mortal with limited understanding. I am grateful for this greater understanding.. Illness definitely generates compassion. Not such a bad thing after all!

Wishing all compassionate days!


5 thoughts on “brain fog?

  1. Thank you for sharing this! Trying to live a normal life with a Chronic Illness can be challenging and well frustrating! It is truly amazing what we can learn to deal with in life and the strength we all have, that is sometimes hidden. I have been battling Multiple Sclerosis for 16 years now and it has had its ups and downs, but I try to hold on to my positive attitude. I started my blog 2 months ago and it has been a great experience. I have been able to communicate with so many wonderful and amazing people that really understand what I go through. I have set a goal for myself that I will achieve because I am stubborn and determined. I am going to one post every day for at least one month! I hope if you choose to follow my blog, you will enjoy! I look forward to reading more of your posts! Take care!!


    • Thank you so much! I’m sorry you are ill too. I’m trying to keep working as long as possible for the health insurance but it’s proving harder and harder. I would post more often if I didn’t work. I will follow your blog as well. Thanks for reaching out to me! Let’s support each other!


      • I said the same thing, but now I have made it a point to get my thoughts out once a day. It has been helpful. I swear, working gets in the way of everything. It is hard, especially when you are in a lot of pain. I missed 2 days of work last week and I am worried about making it through tomorrow. But, hey I will do my best and if it doesn’t work that I can stay all day, all well! If there is ever anything I can do for you please let me know. Sometimes it is helpful just to be able to vent our frustrations. I hope you have a good evening. Take care!!!

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